brain health Archives • Page 3 of 4 • Chronic Alternatives

Chasing Wellness

Hope you had a good few days of enjoying friends and family’s company and ~~perhaps~~ definitely (for me, anyway) eating more than we normally would. I posted on christmas day the next post would be listing ways we could help ourselves through appropriate

eating,
moving,
sleeping and
being still.

I’ve put these 4 aspects of our lives in the venn diagram on this site’s front page as I truly believe when we get them right (whatever state we’re in to start with) good things will follow. I can’t promise a lottery win but better nights of sleep when they’ve been thin on the ground I don’t think could ever be considered a bad result!

For the beginning of the New Year mostly I’ll be coming down off an extended sugar binge. This will more than likely involve going cold turkey from the sweet stuff for four days (again). I Broke my sugar habit at the end of August at the beginning of my candida cleanse which I’ve posted about here, here and here.

This temporary reintroduction has highlighted that my body works better without this substance in it. Whether this is because I’ve been feeding bacteria and causing a boom in numbers of the wrong sort, that don’t help my day to day functioning or I’ve been creating blood sugar rollercoasters that are hard for my system to work around I probably don’t need to investigate further!

I believe, in myself at least and perhaps others that sugar (and to a lesser extent foods that quickly turn into sugar in the bloodstream) functions like a recreational drug eg cocaine in my brain and delivers a release of dopamine, the reward neurotransmitter (more to follow on this subject soon). It feels like my system over the past week or so has behaved as if functioning from underneath a warm, comfortable duvet. This is a nice state to be in when there aren’t things to do but when ‘things’ includes walking with relative ease it’s time to put down even the gluten free mince pie for another year. Saying goodbye to a slightly fuzzy ‘brain fog’ brain will be nice too!

I’ve dealt with addiction to other substances over the years but seeing some foodstuffs as having addiction qualities in this light rings many bells.

It may just be a disordered insulin response which can be addressed with a reduction in sugary, xmas foods and by doing some focused exercise like using a form of HIIT on my exercise bike which I’ve developed over the past year or so after reading other’s thoughts on the technique and through trial and error.

I’ve found short bursts of getting my heart rate up that aren’t long enough to effect a change in body temperature (which can temporarily worsen some MS symptoms) work well for me. So far I’ve been doing this every other day to give muscles a chance to rest and repair but I may try daily with slightly less resistance to address the gluten free mince pies of the season!
doing planks a few times throughout the day.
Check with your doctor before starting any new exercise. Andrew Marr, a BBC journalist and presenter had a stroke after attempting a version of HIIT (high intensity interval training) exercise.
I’ve also been doing less Pilates type floor exercise the past week or so which can help with balance and all of this (extra food and drink and less sleep and movement) that the season brings is being remedied this month.

2015?

Bring on the super wellness!

Do leave a comment, I’d love to hear about what approaches you’re finding work well for you.

challenge, perhaps?

in this post I’d like to add a supplement that I’d left off my previous two yeast posts. You could argue it was one of the most important additions during an effective dismantling of an overgrowth of candida.

Permavite powder; I didn’t use it for the first two months of my candida clearout which I mention here and here while I focused on reducing the invasive parasite which itself, I’ve been told was causing holes in my gut. Intestinal permeability can be caused by many things including a bedded in overgrowth of the yeast candida. When the parasite has been allowed to multiply unchallenged its form changes and it turns into a fungus, creating a thread like structure called hypha which can burrow beyond the gut and set up home all over the body.

HCL supplements; as we age we naturally produce less hydrochloric acid in our stomachs. When all is working well this is our first line of defense against bacteria that comes into the digestive tract in and on the food we eat. If we eat a low salt diet this can also impact how much acid we produce as sodium is needed in the creation of this essential acid.

There’s a whole other post on the finer details of our salt consumption (table salt=bad, rock or sea salt=good) but here is someone else’s version for the moment. Processed (ie table salt) versions of sodium have been stripped don’t hold the minerals that our bodies were developed to ingest at the same time as the electrolyte sodium.

If you’re getting heartburn or recurrent UTIs consider looking into the benefits of taking an HCL supplement with every meal. It may be responsible for reducing tiredness/fatigue after eating. This tiredness could also be down to eating foods your system has an intolerance to or a disordered bloodsugar response which I talk about briefly here.

A number of naturopathic approaches say these holes, which are sometimes referred to as Leaky Gut Syndrome can lead to undigested food particles entering the bloodstream. When this happens the immune system sees stuff that is not ‘self’ and mounts an immune response.

‘Leaky gut’s’ very existence is hotly debated in certain circles but some of the people questioning the theory’s existence (in my experience) talk of mysterious triggering of auto-immune conditions but so far have offered no better alternative.

Gluten
Legumes
Nightshade family of vegetables
Long term use of antibiotics, ibuprofen and any number of other medications.

Having the troops on high alert, facing a challenge with every forkful and behaving in a twitchy, trigger happy manner, attacking anything that looks a little bit different to self (a little like some members of the US police force) is not a long term strategy for any body.

As I started to see signs the overgrowth was lessening including waking with a clearer head, not feeling so… puffy and swollen and the size of my potbelly reducing aswell as losing 7 pounds and counting (whilst not even trying to) I started to use Permavite with each meal to build up my gut lining.

Slippery Elm, Aloe Vera and Marshmallow root supplements, okra green foodstuff and chia and flaxseed all have mucilaginous properties (they go gooey with water) and soothe the GI tract by creating another barrier to protect the gut lining from bacteria in the belly.

I listened to a presentation by Suzy Cohen the author of Drug Muggers, a pharmacist and functional medicine practitioner in the US, recently. In the book she talks about the various interactions prescription drugs can have with each other and the food we eat (fruit juice and cholesterol lowering drugs don’t mix, apparently) and the side effects they can have on our bodies.

Ability to edit myself has slipped (you may have noticed) while dealing with a dying cat at home.

She’s no longer in pain so I’m hoping to get back to doing the things I do every day to feel a little bit better.

LOTS of advice givers!

As patients of incurable conditions nowadays we’re surrounded by advice from mostly well meaning folk. Today’s post will look at a handful of these suggestions. Some of them I first heard in relation to lesseniing MS’s effect on the body but which now have a wider audience.

I asked my neurologist, about 15 years ago about what different sorts of foods should or shouldn’t I be eating?

It won’t really make any difference, came his reply, as long as you eat a sensible low fat diet; the same thing as everyone is encouraged to do. I can refer you to our hospital’s dietitian if it’ll make you feel any happier?

His utter lack of interest in the fuel we provide ourselves with I felt was shortsighted at the very least. I’ve never put diesel in my petrol car because I’ve heard the car wouldn’t run so well if I were to do so. I went to the appointment and was told the only evidence she could find after searching the available data was a diet high in polyunsaturated fatty acid was mentioned in a couple of studies as showing potential worth in following.

Things have moved a little in the intervening years – well, there’s more information to be aware of and a greater need to pick a path through the avalanche of data.

15 years later and one of those suggested approaches to eating is widely recognised as Paleo. The Western world and our cousin seem to be on some form of it. You could argue the rest of the world are still on it (assuming they’re not yet under the shadow of the golden arches).

This shifting and creeping nature of food advice I feel highlights the similarities between various chronic diagnoses and people in general. We’re all trying to slow the aging process or, at least ensure our time on earth is as comfortable and productive as it can be. Chronic disease is just some of our bodies choosing to age differently.

As scare stories about our food sources and methods of commercial production are revealed even some perfectly working bodies are wishing to keep those bodies from unnecessarily deteriorating by jumping on the bandwagon of… essentially… not eating stuff from packets.

Saturated fat is no longer the devil in disguise but it is considered so to some MS diets (see further down for a link to the Swank diet).

So, it would seem not just the oil but the heating of the oil is relevant.

This is one that I found recently. I was under the impression that canola oil as a foodstuff was questionable? For a start, there’s no such thing as a canola plant that might produce canola seed (Canola is in fact, according to wikipedia, a creation of the main suppliers of rapeseed oil from Canada).

I include links from a variety of sources to highlight the need to keep our wits about us!

The image is a field of oilseed rape in high summer near my home – when becoming rapeseed oil it can be extracted mechanically involving solvents and heat; Canola (amongst others) or it can be cold pressed like the best virgin olive oils and this process is likely to cost more.

Canola provides omega VI essential fatty acid (which sounds like it should be a good thing, right?) but if we eat a typical Western diet/SAD (standard american diet) we’re most likely brimful of VI but deficient in omega III.

In a perfect world/caveman times/paleolithic era before farming when we lived in small communities and hunted and gathered for each other (pretty far from where we in the Western world are now) we’d eat a roughly one:one balance of the two fats but we eat biscuits and other tasty and addictive stuff from packets.

This is another oil story (olives this time) but it has good news!
We’ll save saturated coconut fat for another post (one of the paleo folk’s essentials).

Stuff from packets is made to make profit (nothing wrong with that) but using the cheapest possible ingredients often means using these cheap seed and vegetable oils that are extracted in ways that involve substances I wouldn’t want to eat before it even gets to our plate, mouth (or oven for that matter).

Omega VI tend to be pro-inflammatory which, if you have a long term health challenge I believe your symptoms could be exacerbated by inflammation brought on by consuming way more VI than III? This is what the ‘avalanche’ link at the top of the page says, anyway. Even if you don’t have a chronic condition a body will be happier and function better with less omega VI.

Check with your care giver or do a search on google but inflammation appears to lie at the heart of many intractable conditions for which there has been no cure found, as yet.

Omega III is anti-inflammatory and found in raw nuts and oily fish. Inflammation, as I discuss in an earlier post happens in our body and it’s a smart method to get the organism to sit still and allow healing to happen rather than cause further damage (a vast simplification but you get the gist).
Here is another page detailing the issues we have with inflammation in the body.
Here is another ms specific diet from a doctor with MS.
We haven’t even got onto the SWANK or the
Best Bet Diet (which is a modified Paleo approach and reduces the amount of foodstuffs the body might potentially react unfavourably to.
There are now so many nutrition based approaches for dealing with a long term condition we have a flood of information and websites and folk offering advice.
Which I appreciate is what I’m doing but at least I have no bias; I’m throwing bits of all that I’m aware of at you!

I’ve been listening to a talk from Sarah Ballantyne (author of the Paleo Approach, auto-immune diet book) and she explained some of the reasons for avoiding legumes (beans, chickpeas, peanuts, peas) and nightshade family (potatoes, tomatoes, eggplants/aubergines, peppers).

Saponins somehow came into her explanation. They can contribute to making holes in your gut which allows food particles to enter the bloodstream and create things for your immune system to throw a hissy fit at. Fatigue can be one of the side effects. I’m putting together an article on the subject of a leaky gut at the moment.

Getting a bit of the ‘why’ has helped me knock legumes off my daily diet something I’d struggled with in the past (legumes and nightshades were verboten on the Best Bet Diet also).

I’m choosing to follow an adapted paleo diet (sweet potato in place of white potatoes but I don’t go quite as crazy for bacon as they seem to. It was a bit of a bind to avoid eating legumes after stopping gluten a lot but not all of the MS (and lifestyle paleo) diets agree that our bodies weren’t built to tolerate a grain which has only really been around in an evolutionarily noticeable quantity for not more than 10,000 years.

Farming and a steady food supply has brought huge progress to society if you are one of the consumers. If you have been one of the producers of grain, you have been tied to the soil and made a slave to this phenomenally successful organism.

I’d love to hear from you to find out what foods you’ve found worth avoiding or ones you really can’t imagine ever avoiding!

We’re all basically the same but slightly different beings.

Find your own path, I’d love to hear it.

I still don’t think I’ve settled on mine although this article (from a mainstream news source) is a help!

Any port in a storm?

I chose this image of mine to illustrate the need of any port in a storm but it’s a disordered environment, really. The glowering images of a storm on a Norwegian sea I’d thought of to illustrate this post are on a packed away external drive at the moment. I feel now, this image works better – something’s wrong with what would normally be a charming image of rural countryside.

There might be any number of contributing factors that bring a hint of the nautical to what should be a bucolic agrarian scene.

Brain you tube: The body will keep circulation for as long as possible to basic stuff like breathing. The newer stuff – thinking, writing poems, doing a One Direction dance are not worth saving at all costs by the brain. They’re less important because they aren’t essential for our survival. I think it’s good to get an image of how things are supposed to be.

Fecal transplants seem to be something that’s been helping conditions obviously affecting the gut – Clostridium Difficile for example. Now it’s also being suggested for neurological disorders such as MS, Parkinsons and Autism.

This post will be full of things that have caught my eye recently. Here’s one to throw into the mix: alkalize for health. We all know that veg especially greens are good for us (read previous post here where I speak about folate) but also making our body less acid has untold benefits for a body that’s become used to one too many cakes or steaks (both food items I heartily approve of but probably not that extra helping?) Trying to increase the number and variety of veg in the diet I see as the take home message of the page.

Get to know your body whether it’s behaving well or not. I had my genome sequenced. I mention my experience of the process in previous posts here and here. It’s pointed out that my supplementing with

vitamin B12 will be better being done with hydroxy rather than methyl B12.
My vitamin D receptors aren’t working properly which could explain my especially bad SAD in December/January.
certain glutathione processing SNiPs were completely missing so it seems it would be a good thing to supplement with glutathione (I’m using a cream applied under the ribs (over the liver) that will be absorbed transdermally and will hopefully give my liver a bit of a leg up and help it rid the body of general day to day toxins. I hope this might result eventually in a bit more energy. I probably have a lot more reading to do!

Here is another page that highlights why we want to get all the vitamin D we can. The methylation cycle is fiendishly tricky to understand (well, it is for me anyway).You may have noticed from the flavour of the posts on here so far that I’ll point you toward things that aren’t necessarily cures – the approach, protocol or exercise regime won’t make you all better by tomorrow but I’ll suggest things that might make life a little better whether you may be someone with a condition, care for someone with a condition or, you’re entirely well and somehow ended up on this site.

How does this help?

It might not help anyone else but I take some comfort knowing there may have been an underlying reason I didn’t fully engage in life at school and could never have been considered life and soul of the party! Half the population are thought to have impaired SNiPs. The information I’ve found out about me makes me wonder about the worth of double blind placebo controlled trials for complex conditions and also all the people who grew up being told they were slow, stupid or lazy.

All these lines of investigation and exploration might help an individual a little bit. I believe any port in a storm will do for me. Having a chronic, neurological disorder I believe can sometimes be likened to being lost at sea. You can’t rely on a stable base or solid ground or anything!

Dr Amy Yasko, a molecular biologist with an interest in healing her child’s autism has written about the process she has taken to getting a disordered brain back to some kind of normal.

I consider myself to be at the beginning of this process.

I took a food intolerance test over 10 years ago so know what foods my insides prefer not to deal with (dairy and gliadin, gluten essentially).
I got 23andme’d this summer and have found out I need to reshape a malfunctioning (from birth) methylation cycle and
I’ve been on a candida clearout for the past few months (please read 2 earlier posts on the subject here and here).

I wonder whether a body not working optimally from before birth also contributed to some of the vascular issues whose existence is being debated in cases of MS. I went to get CCSVI’d by Dr Sclafani in Brooklyn two years ago and have mentioned it here)The hypothesis that Dr Paulo Zamboni first put forward in 2009 but was initially investigated by Dr Franz Schelling (which i talk about here) is called ccsvi.

As we know, MS (and life) is multifactorial.

Candida Overgrowth Part 2 and/or SIBO?

This is the second part of my candida cleanse collection of posts.

What can we do after finding our spit sinks first thing in the morning? (please see the previous post for details on sinking spit here).

I’ve entered into this protocol with a bit more vigour than in the past and am now into my 3rd month of a daily diet of pretty much no sugar, booze, yeast and/or vinegar but lots of fresh veg (mostly greens less starch) and no sweet fruit (green apples and blueberries are ok in moderation). Recently I have reintroduced fermented vegetables (I describe the making of them here).

I checked my spit this morning as I’ve been feeling slowly, slightly a little better in a number of areas.

My limbs feel more… reliable,
my balance seems more centred (I don’t feel like I might overbalance and fall over as much and
my head feels clearer. I appreciate none of those statements sound like gamechanging successes but
I no longer crave sugar! That I consider to be a resounding success.
I treated myself with a square of 85% dark chocolate and there’s still a quarter of the square left this morning!

I’m still not great at carrying two cups of hot liquid in both hands at once (a few drops spilt but neither cup tipped) these are all tiny signs (to me at least) that things are changing. Grated ginger in one and loose leaf green tea in a yellow submarine in the other are both I believe, polyphenol rich and therefore, desirable?

I have a question mark as there are so many things I don’t myself have proof of and have to take it on trust that various people on the internet aren’t lying to me and as far as I know, I’m not lying here either but like I mention in various other posts, your best bet is to do lots of reading from lots of different places and become your own research and/or researcher.

Anyway, let’s get on to how these happy changes may have come about.

In the previous post I spoke of hugely reducing my sugar intake, stopping booze, vinegar and generally what could be considered as excess starch consumption. It’s not like I was a booze hound or I ate all the cakes every day but even a tiny amount was giving fuel to the yeasts that I felt had grown out of control in me resulting in recurrent UTIs, fatigue and fierce sugar cravings.

Along with those dietary changes I followed the regimen of antifungals as suggested by Christa Orecchio when talking to Sean Croxton (both of whom I believe I mentioned in the previous post. So, I’m hoping to try and get rid of

recurring yeast infections
remorseless fatigue
bloating and gas
poor memory
brain fog.

At every meal, I have been starving the yeast of its favorite food (by not eating those foods) aswell as, in 4 day rotations, taking two at a time of:

pau d’arco
olive leaf extract
oil of oregano (this one is cruel as the smell reminds me of Italian food!)
grapfruit seed extract
uva ursi

As well as my

Betaine HCL supplements with every meal (the dosing of this supplement deserves its own post – watch this space).

This supplement enhances the amount of stomach acid to help digest a meal. When things are ticking along nicely Hydrochloric acid should be your first line of defense in killing pathogenic bacteria from food but age, a history of disordered eating, antibiotic use, stress and low salt diets can all interfere with our body’s natural ability to produce it. Every morning, before food I take a spoonful of

Diatomaceous Earth and
Bentonite Clay mixed with water.

The clay has a positive charge which can be lessened when it comes into contact with metal. Luckily the company I bought it from supplied a wooden spoon. The DE (food grade) has really sharp edges that scour out your gut and the clay clings to particles. Essentially the two products together behave like Harvey Keitel in any number of his roles as a ‘cleaner’ in films. Combined they remove the evidence of the bacteria’s presence in your body.

I think this subject could be spread into a third post but for the moment I’m stopping here. My spit was floating and I thought it might be safe to have a glass of wine, it wasn’t. So, I’m back to ensuring my spit doesn’t drown! I’ll keep you informed of changes.

I mention SIBO in the title and honestly have little idea of the difference in action of an opportunistc yeast and a Small Intestine Bacterial Overgrowth as I haven’t gone as far as sending my stool off to be analysed. I’ll see what I can do on my own for the moment as I understand there is some overlap between having an overgrowth of one organism when compared to another.

Candida Schmandida?

There’s regularly much mention in complementary/well being/alternative circles about troubles with candida albicans, its overgrowth and the many and varied symptoms it can create in humans. This post will be looking at just one strand of how to get a body working better by introducing how to see if it’s a problem for you.

My next post will go into greater detail about how to reduce it’s presence in the body. Have a look online there are many people who suspect it could be an issue for a great many people – not just those with MS or other auto-immune conditions.

Have you had what feels like fatigue out of all proportion to any exertion on your part?
Do you get aching joints not explained away by your activities?

These are just a couple of the symptoms attached to the actions of this opportunistic organism in your system. Fatigue and aching joints could be down to many other things so read on to find out how to rule this culprit out.

When I first started my ‘journey’ towards enhancing my wellbeing (soon after diagnosis) I spent the afternoon in a bookshop choosing which book to buy to tell me something about the condition, Multiple Sclerosis, a self help guide seemed to be the most positive in outlook and full of what appeared useful stuff.

This all happened in the days before I was introduced to the internet but it’s still a great book and the guidelines hold their own against many websites and blogs nowadays. I’m eternally grateful to the author Judy Graham for introducing me to an alternative way of looking at my condition before the tsunami of auto-immune journeys flooded the wellness side of the web.

I’ve hesitated to use the word empowering in previous posts but I think it’s an apt description of the book I read and how I felt after reading it.

Since then all the Ws have arrived and google helped the web become a place to go and find stuff out, whilst not even having to put your shoes on to leave the house… what progress!

Various candida cleanses are available so I thought I’d join in! Seems to me the best place to start is finding out if it might be an issue for you and could be contributing to existing symptoms you may have.

My thanks to Christa Orecchio for some of the detail collected from a talk given to Sean Croxton (I mention his JERFing mantra elsewhere on here). Just eat real food (his mantra) I mention in an earlier post and backed up by Dr Josh Axe and any number of naturopathic practitioners:

first off is candida albicans rampaging in your body?

After getting up in the morning, before you brush your teeth or have a cup of tea/coffee/hot water and lemon juice (helps alkalize your system, I’ll write about this in another post) pour a glass of water and work up some spit in your mouth then spit into the glass and leave it til after you’ve had some breakfast (not somewhere where someone might accidentally drink it!)

After half an hour or so has your spit stayed floating on the surface of the water or has it ‘grown legs’ and some or all of it has sunk to the bottom of the glass?

When everything’s in order and we haven’t been taking another curse* (sic) of antibiotics or been dealing with a range of different stressors on the body (including physiological stress from food intolerances as well as emotional and/or mental stress) we manage to co-exist with an array of symbiotic hitchikers in our systems. These guys live in our gut and help to digest our food when all’s going well and communicate with other parts of us like our brains and fat storing departments.

*Don’t get me wrong, antibiotics have their place but it seems we, as a society have come to rely on them too much which has brought its own well reported troubles.

You may have noticed, as members of the western ‘developed’ world, most of us are pretty good at not allowing our bodies to reach calm. Buddhists consider our constantly gabbling brain to be a ‘monkey mind‘. this incessant internal noise can contribute to a poorly performing immune system which, in turn can pave the way for an opportunist bacteria to make a break for the big time in your belly.

Anway, I should stop showing you evidence of my monkey mind and get back to the detail of this particular candida cleanse.

Did your spit sink?

If it did that’s a sign there are too many things living in your digestive tract (the tube between mouth and anus). In earlier posts I’ve mentioned Hippocrates and him believing that all disease starts in the gut. Most, if not all functional doctors agree.

One of the first things to do is remove from your diet stuff that these rowdy inhabitants of our gut like to eat. Unfortunately it’s the same kind of thing we can be partial to, too:

sugar
vinegar
yeast
alcohol

Incidentally, this is how sugar effects our brain without any need for ‘outside’ help. Sugar it seems doesn’t do us or critters living in us much good.

There’s more to follow but try doing less of these things to start with and see if your body behaves a little better without their influence.

My next post will go into more about the symptoms and the 2+ month protocol involved in slowly removing this energy robber from your system.

I mention Judy Graham as she talked about candida and I read about it some 15 years ago and things might have progressed differently if I’d tackled this situation then.

I appreciate if, if, if don’t amount to a hill o’ beans suffice to say I’m two months in to the no booze or sugar protocol and I think it’s doing me some good but perhaps too early to tell?

The MS treatment I want to explore

In the news today (20 October) the UK was given the proposition that dying folk should be given experimental drugs before they get through the full trial process. Let’s ignore for the moment that the full trial process hasn’t delivered much for MS patients. So what sort of shenanigans are pharmaceutical companies looking for? Extensive testing hasn’t worked in MSers favour so what sort of dark hell might be unleashed without the double blind placebo controlled ‘gold standard’ in place?

Colorado have reported on this idea in May which a bit puts paid to my theory that it was a fine piece of distraction from the venal behaviour of drug companies not investigating an African disease until it starts threatening the monied, developed world.

My first thought was that it was a bit of damage limitation from the pharmaCos to distract us from the fact that curing a killer like ebola just isn’t financially worth them even starting (do they have a union that does pr for ALL their questionable/commercially sound behaviour?).

Bloomberg Businessweek reported on the plan in August.

Why does the treatment of the disease Ebola have any relevance to MS?

Don’t worry, I’m not connecting the two in a symptom sort of way but I believe both conditions have been poorly served by pharmaceutical companies.

I really feel quite uneasy about the treatment that pharmacos have meted out on MS patients throughout my 20 year ‘MS career’. When I couldn’t get hold of DMDs, before they were available in the UK I wanted them very badly, then NICE was born (especially to avoid the ‘postcode lottery’ surrounding MS prescriptions) and they became available so I read up the trial results as I’ve mentioned more than once.

In my mid 20s with not many regular symptoms it didn’t make sense to me to take multiweekly injections for a less than 50/50 chance of benefit. Other than a couple of goes at steroids to get back my ability to walk again after fresher’s flu went bad in me I have stayed pharma free.

I think I’ve talked about a vascular aspect to MS having been spotted by Charcot in the 19th century. He gave this disease a name and yet this aspect of our condition is barely being investigated. I’ve certainly mentioned my own taste of this theory in Brooklyn a couple of years ago, where an ultrasound was taken of my jugular veins from the INside where a valve was seen to be blocked shut.

We have more and more appropriate imaging technology since noticing in 19thC postmortem brains that veins might be implicated. Why is this theory not investigated further with the full force of what we have at our disposal? It doesn’t help to get too stressed about it but, no matter how many times I stamp my feet, life STILL isn’t fair. My blood gently simmers at the injustice of our woefully inadequate treatment from the people we’re supposed to trust. I feel for those who live under the shadow of Ebola and the horrific injustice they face every day when they continue to see no effective science being done in their name.

I’m glad my father encouraged me to question everything (perhaps not consciously but he did). I think it’s stood me in good stead for identifying folk’s motives. Although I s’pose, with pharmaceutical companies you don’t have to dig too deep to see the profit motive.

Perhaps I’m very wrong though? See, that ‘question everything’ trait is shining through!

Simple strategies for living well

Take a piece of string, measure your height with it and fold it in half, does it fit around your waist?

Waist to height measurement is a pretty good indicator of whether you really need that extra helping of… cake/pie/favourite foodstuff!

A balanced diet is made up (thanks to Paul Chek for this simplification) of food with eyes (protein and fats) and food with no eyes (carbohydrates). Avocados and nuts are exceptions to that rule but generally vegetables growing above ground like leafy greens will be less starchy than vegetables grown below ground: potatoes, sweet potato, beetroot, parsnips and carrots to name a few.

Why does all this matter?

There are a growing number of people that believe the gut is at the heart of most disease. Hippocrates got there first over two thousand years ago but a growing number of people alive today are also questioning the quality of the food we eat nowadays and are looking for simpler/less procesed foods to eat. Stuff that our bodies have evolved to digest over multiple dozens of millennia.

There are many different versions of the ‘Just Eat Real Food‘ sentiment. Eat food, not too much and mostly plants is the simple guideline given by journalist Michael Pollan in his book In Defence of Foods.

Food = Epigenetic information. Which is a new way to think of our morning break fast.

Every piece of food we eat ‘talks to’ the cells in our body. These conversations can shape how our bodies continue to exist in their environment. I think but am not fully read up on the research yet, that what we eat over time can impact how our bodies respond to everything around us. And our decendants!

Epigenetics is a fascinating area of research: A 2nd WW dutch famine had repercussions for the grandchildren of those who lived through it. Our DNA forms the building blocks of who we are but those building blocks can be shaped by the world around us, too.

This nutrition lark seems to be far from straightforward!

I attended an online summit called the Evolution of Medicine at the end of September 2014. In it a number of functional medicine experts and enlightened ‘regular’ doctors were interviewed and issues were identified that needed to and were beginning to change in mainstream medicine.

We have a slew of chronic disease – much of it could be considered to be mediated by the way we live. Type II diabetes is better dealt with by addressing what you eat and how you move now rather than waiting for a profoundly reduced insulin response to turn into heart disease, stroke, nerve damage, wonky eyes (my wording)… the list goes on.

We eat a diet so far removed from what our bodies have been designed to cope with, no wonder they’re ‘slipping up’ and creating disease in us. It’s not just GM foods that could be storing up trouble for us and our children. Food is just one aspect of how we can make our lives a little better.

Small changes to how and how much we move can have surprisingly satisfying results. Getting outside and going for a walk every day is good for the soul as well as our heart and lungs. I’ve been performing my own version of HIIT (high intensity interval training) on my exercise bike. I can’t walk very far and have a wheelchair for events that call for more walking than say, getting round a supermarket with a trolley to hold onto so it’s not often that I can achieve a change in my heart rate.

There are a wide variety of websites I visit and gather what I hope is useful information to me and I assume others including a number of strands of research from around the world. Change in my body (including not getting out of breath so quickly) seems to be happening… slowly but I think getting the heart rate up must get more blood pumping round the body and that includes the brain so, a handful of 30 second bursts on the static bike every other day with the resistance turned up is giving my brain a treat. It also has a happy side effect of warming perpetually cold hands and feet!

To a continually pumping heart the brain is just another extremity (like hands and feet) that the pressure and circulation doesn’t always reach. Gravity works against the brain here, unfortunately.

Always low blood pressure can be as problematic as high BP resulting in fatigue perhaps partly because the brain isn’t getting enough glucose or oxygen to function optimally.

I read this in a fascinating book Why Isn’t My Brain Working by Datis Kharrazian. He has used a similar functional approach to identify strategies to improve an underperforming thyroid.

It’s always a good idea to get an MOT from your gp to check that your body can cope with the changes you’d be asking of it with a new exercise regime. I never used to be much of an exercise person but I was also a smoker as a youngster so i wasn’t really caring what my body may have been trying to tell me!

Small things can make a difference and some simple strategies have got to be worth a go, no?

alternative healthcare

“Right now, they [mspatients] are not getting the kind of information we as [health care] providers would like them to get,” Wray said.”

This is quoted from a Boston Globe article of the 11th September. ACTRIMS – ECTRIMS researchers were apparently concerned about the ‘perceptions’ of ms patients.

I’d like to know where would doctors and MS researchers present at the conference rather patients get information from?

Surely not them?

Are these the same groups of people who didn’t believe in the possibility of an overgrowth of candida albicans? (thinking of more than one old GP when i make this statement)?

The same people who throw antibiotics at a problem as a first line of defence? (thinking of an old GP when I make this statement) rather than further investigation of the problem. I appreciate GPs have little time per patient but perhaps we could consult a ‘project manager’ for our bodies or even be entrusted to be our own project managers?

We are perhaps the best people to be put in charge of enhancing our own health?

The same group of people who, along with most of the rest of us didn’t know the significance of a microbiota until we found out from various TED talks over the last few years and recently a BBC2 Horizon programme on allergies (I referred to one of the over 1,000,000 pages google finds on the subject in an earlier post?

The same people who thought stomach ulcers were caused by stress not an infection?

The same people who believe that what we eat can’t have as much effect on how we feel and function than their questionably effective pharmaceutical offerings? (thinking of an old neurologist when i make this statement).

The status quo can’t continue.

The image above comes from a collection of mine with the name Earth Abides, Ecclesiastes 1:4. It was the title of a 1949 American sci fi book my dad gave me by George R Stewart. The world’s population gets wiped out and civilisation goes about starting again amongst the remains of our current civilisation.

Looking back, to get an apocalyptic tale as I was on the cusp of becoming a teenager was very good. It taught me to question everything. The message I chose to take from the book was ‘nothing that lives on earth is forever but that’s ok because we can choose to adapt’ and the planet will continue.

Things seem to be changing and we now have architecture acknowledging the presence of and creating designs specifically to take advantage of omni present bacteria.

If we believe that the 20th century was all about stamping out pathogens and healthcare was involved in a mighty struggle between us and them (evil bacteria causing disease left right and centre). Then the 21st century shape of healthcare will be all about harnessing the power of these omnipresent beings to help us, the puny human.

Some question our faltering scientific progress in medicine (as an owner of a chronic condition one of those ‘some’ is me) and ask whether antibiotics represented the only noteworthy advance in medicine since William Harvey’s discovery of blood’s circulation in the body in the early 17thC. This discovery rather neatly yet arrogantly ignores the Ancient Chinese’ awareness of body systems (please see earlier post).

Perhaps I’m biased but I choose to firmly believe that asking questions and finding out answers can only be good for our brains.

I feel the image above still stands as a representation of all that we live amongst and stands as a fine illustration of the impermanence of man. This too shall pass could be an alternative title and probably, bacteria will continue, relentlessly, to play their part long after our petrol shops have gone!

Are doctors beginning to get it?

Everything is awesome! (apologies, I watched a movie yesterday, Lego related post to follow)

This piece of news came out on the anniversary of the start of the 2nd WW. One has no bearing on the other, I’m not big into coincidences and fate (I wanted to take this opportunity to let you know that even though I use a word later on in this post I don’t knit my own muesli or believe in numerology). That’s not to say they don’t hold worth for some people but I’m not one of them.

Nowadays I spend my time researching or more precisely, wading through online ‘cures for MS’. For the record, I don’t think those words sit well in a statement and am highly wary of anyone who tries to jam them into a sentence together.

I’ve been building up to a post that was to be asking ‘Why Doctors Don’t Get It’. In it I refer to the Aesop’s fable of the wind and sun competing to get a man’s coat. We all know that the persuasive heat of the sun was far more effective than the brute force of the North wind.

Seeing this particular application of research based on dampening the allergic response in folk with troublesome allergies we have a sign that medical professionals are getting it. They may no longer see the words MS and choose to research treatments that, you could argue, are akin to using sledgehammers to crack nuts. It feels like doctors/consultants/experts don’t especially consider the bodies that carry the condition they’re creating a treatment for.

Does fear of this condition perhaps lie at the heart of why it’s been considered a perfectly acceptable treatment option to wipe out a fairly essential part of a human’s functioning? We need our immune system to defend against the many external assaults a body faces every day. Or is it that Western science practitioners, like small children are using a mallet to hammer a square peg into a round hole rather than examine the qualities of either component?

AIDS drugs and cancer therapies have been suggested and offered as a way to address our brain’s apparently self destructive tendencies. Let’s rush instead shall we to pharmaceutically punish the MSpatient/EMO self harmer by offering an already confused brain Lemtrada/alemtuzamab (a recycled cancer drug).

There’s nothing much binary about the human body so why has it been, until this recent development, that research has involved switching things off and on again?

Doctors can be so much more than IT support workers dealing with squashy cabinets!

I used to howl at the moon In an earlier blog and there I pondered on the difference between Eastern and Western medical practice. Both types seem to deal with the human body very differently.

From what I’ve experienced and read Eastern medicine considers our wobbling sacks of bones and processes holistically. I hesitate to use that word because I know it gets laughed out of a Western doctor’s waiting room (this is the word I was talking about at the beginning of the post). As if treating symptoms without addressing why a thing is happening has been shown to be a terribly evolved way of approaching the human body… please take a look at an earlier post I’d written about acupuncture at the beginning of the year in response to a frankly arrogant medical professional’s somewhat childish assessment of a science/methodology he’s chosen not to find out about. Like Western medicine has all the answers?