Are doctors beginning to get it?

pleasing view of natureEverything is awesome! (apologies, I watched a movie yesterday, Lego related post to follow)

This piece of news came out on the anniversary of the start of the 2nd WW. One has no bearing on the other, I’m not big into coincidences and fate (I wanted to take this opportunity to let you know that even though I use a word later on in this post I don’t knit my own muesli or believe in numerology). That’s not to say they don’t hold worth for some people but I’m not one of them.

Nowadays I spend my time researching or more precisely, wading through online ‘cures for MS’. For the record, I don’t think those words sit well in a statement and am highly wary of anyone who tries to jam them into a sentence together.

I’ve been building up to a post that was to be asking ‘Why Doctors Don’t Get It’. In it I refer to the Aesop’s fable of the wind and sun competing to get a man’s coat. We all know that the persuasive heat of the sun was far more effective than the brute force of the North wind.

Seeing this particular application of research based on dampening the allergic response in folk with troublesome allergies we have a sign that medical professionals are getting it. They may no longer see the words MS and choose to research treatments that, you could argue, are akin to using sledgehammers to crack nuts. It feels like doctors/consultants/experts don’t especially consider the bodies that carry the condition they’re creating a treatment for.

Does fear of this condition perhaps lie at the heart of why it’s been considered a perfectly acceptable treatment option to wipe out a fairly essential part of a human’s functioning? We need our immune system to defend against the many external assaults a body faces every day. Or is it that Western science practitioners, like small children are using a mallet to hammer a square peg into a round hole rather than examine the qualities of either component?

AIDS drugs and cancer therapies have been suggested and offered as a way to address our brain’s apparently self destructive tendencies. Let’s rush instead shall we to pharmaceutically punish the MSpatient/EMO self harmer by offering an already confused brain Lemtrada/alemtuzamab (a recycled cancer drug).

There’s nothing much binary about the human body so why has it been, until this recent development, that research has involved switching things off and on again?

Doctors can be so much more than IT support workers dealing with squashy cabinets!

I used to howl at the moon In an earlier blog and there I pondered on the difference between Eastern and Western medical practice. Both types seem to deal with the human body very differently.

From what I’ve experienced and read Eastern medicine considers our wobbling sacks of bones and processes holistically. I hesitate to use that word because I know it gets laughed out of a Western doctor’s waiting room (this is the word I was talking about at the beginning of the post). As if treating symptoms without addressing why a thing is happening has been shown to be a terribly evolved way of approaching the human body… please take a look at an earlier post I’d written about acupuncture at the beginning of the year in response to a frankly arrogant medical professional’s somewhat childish assessment of a science/methodology he’s chosen not to find out about. Like Western medicine has all the answers?

mainstream and less so

night scene of a Brooklyn sidewalk

I took this image when I was getting a form of angioplasty to counter some of the effects of MS in 2012. It hasn’t stopped the disease but my heat intolerance and brain fog is still vastly reduced two years later. I don’t believe the auto-immune theory answers all the questions that MS poses.

The auto immune theory lies at the base of mainstream, accepted MS treatments (see below for details and links on most).

An auto-immune disorder arises when the immune system, the body’s bouncers get confused, go a bit postal and start attacking the body’s own cells. In the case of MS the bodyguards appear to start beating up the nerves’ protective coating (myelin). There’s still big questions about proof that this is what’s happening in MS. MS auto-immune and/or neuro degenerative?

In the vascular model, researchers hypothesize that these bouncers are merely sweeping up at the end of a particularly rowdy night rather than attacking these cells themselves. It is theorized the damage was a side effect of vascular disruption.

The autoimmune model believes that these bodyguards go rogue and kill perfectly healthy and functioning cells. They can no longer distinguish between foreign cells (whose presence would rightly cause an immune response) and self.

The alternative MS theory has been explained most recently by Paulo Zamboni of Italy. He considers MS to be mostly a vascular disorder and a name for this disorder is Chronic Cerebro Spinal Vascular Insufficiency (CCSVI). There are a number of people who don’t agree with the theory that has its roots in the 19th century.

I felt the theory was worth further exploration and went to Brooklyn to get someone else to explore my vasculature for me.

The standard medical approach to multiple sclerosis includes disease modifying therapies, DMTs that don’t really address symptoms as such and require quite a leap of faith in your belief of your caregiver’s ability to alter the course of your disease. That could encompass having a belief in your yoga teacher as much as the men in white coats.

Having some sort of belief in something appears to be good for your brain to get on with its own healing (our brains consist of about 7% stem cells that could, in theory replace our own damaged myelin. Choosing to believe in something I don’t believe is silly.

MS medical treatments started with Copaxone, Rebif, Avonex Beta-Seron (fondly referred to as the CRAB drugs by past patients) which form the cornerstone of accepted MS modification. These guys have a pretty exhaustive list of some treatments available to us. The first of them was released in the US in the early 1990s and the fair prescribing of them brought about the creation of NICE (National Institute for Clinical Excellence seems to have changed its name once or twice and now stand for NIHCE… Health and Care Excellence rather than Clinical.

Newer treatments include Tysabri which has a very chequered history including being withdrawn from market and then brought back and still being responsible for some of its users contracting another brain disease entirely, PML!

Campath or to give it it’s newer name Alemtuzamab works by knocking out certain proteins in the patient’s immune system. This therapy was first used to treat cancer – decide carefully about the risks and benefits attached to taking any treatment but perhaps especially a recycled cancer drug?

Alternative treatments I’ve tried include hyperbaric oxygen therapy HBO, treating CCSVI, physiotherapy, Feldenkrais Method, Shiatsu, Reflexology, diet modification (gluten, dairy and sugar free), as wide a range of exercise as is possible, mindfulness, MBSR emotional freedom technique EFT, vitamin and mineral supplementation, Low Dose Naltrexone (LDN), Inclined Bed Therapy (IBT), and are discussed further on other pages on the site.

I also take cannabis using a vaporiser as it seems if big pharma are trying to replicate the real thing with Sativex why don’t I just get hold of some of the real thing?

I feel having a chronic condition calls for becoming an active participant in our own health rather than sitting back and taking what’s offered.