disenchanted forest
Oct28

disenchanted forest

Sometimes it feels as if my very determined cat has as much chance of getting to the bottom of MS as the current crop of researchers. What does Russell Brand (famous in the UK for being a non-voter, comedian, actor, past drug user and ex husband of Katy Perry) have to do with the current state of MS research? Much more than my cat, it turns out. A number of us with this particular chronic disease are disenchanted by what the medical...

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The MS treatment I want to explore
Oct20

The MS treatment I want to explore

In the news today (20 October) the UK was given the proposition that dying folk should be given experimental drugs before they get through the full trial process. Let’s ignore for the moment that the full trial process hasn’t delivered much for MS patients. So what sort of shenanigans are pharmaceutical companies looking for? Extensive testing hasn’t worked in MSers favour so what sort of dark hell might be unleashed...

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Improving Prognosis?
Oct05

Improving Prognosis?

The image of ivy is from my back garden and illustrates one of the few things that truly thrive there. NIHCE have issued guidelines to address which treatments might be worth the NHS providing for MS patients. Aside from the disease activity going on in our brains we have similar symptoms to many other chronic conditions. Some of those symptoms are brought on by our bodies becoming increasingly inactive due to deterioration in our...

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alternative healthcare
Sep14

alternative healthcare

“Right now, they [mspatients] are not getting the kind of information we as [health care] providers would like them to get,” Wray said.” This is quoted from a Boston Globe article of the 11th September. ACTRIMS – ECTRIMS researchers were apparently concerned about the ‘perceptions’ of ms patients. I’d like to know where would doctors and MS researchers present at the conference rather patients get...

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Personalised help for MS and other long term conditions?
Sep01

Personalised help for MS and other long term conditions?

So, in the post “eat your greens” I mention the process I’ve just begun which involved sending some spit over the Atlantic to have my DNA sequenced by these folk. I had some reservations about finding out something in my genetic code that might be lurking in the future but, knowledge is power. I might be worried about how this data could be used if it fell into the wrong hands but having an ms diagnosis in the here...

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TCM v. Western Medicine
Apr09

TCM v. Western Medicine

Traditional Chinese Medicine is taking more and more space in a GP’s toolbox of treatment options where whippersnapper Western Medicine is unable to provide help. What breathtaking arrogance! This post will be about a man who has an opinion reported to you by a woman who also has an opinion. I make this clear because as human beings we could both hopefully have our voices listened to. As a medical professional, his opinion on...

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